Mouths of Babes 

“Mommy, you stay at the doctors a long time today. You can come home when you’re all better,” said Bobby, my four-year old.
Bobby is the sweetest, most caring little boy. He looks at me every day since I have been home from my most recent surgery with such concern on his face. From his innocent eyes he sees this huge incision across my neck and two drains poking and hanging down filling with fluids. He walks me to my bedroom during the day and asks to cover me up with the blankets and closes the door so I can “rest.” He is never prompted, he just wants me to get better so “we can go places.”
Little does this four-year old know that he is giving me the most encouraging words in the world. Bobby, Brody and Natalie are three of my reasons for this fight. They need their mommy. I may not be the best mom to them that I can be right now, but I will get better and I will be the best mom to them for the rest of their lives.
I attended my post op appointment today to talk to my doctor about my serve pain – which an increase in pain medicine was prescribed, discussed keeping my drains in until next week – since there is still too much output and I don’t need more swelling, discussed scheduling my appointment to meet with the radiologist at John Hopkins sometime next week and was informed that in addition to radiation therapy I may also need chemotherapy depending on the pathology report. “SURE! Why not?! Just add it to the list!”
This has all been so much to process and so much to manage. All I know is that the fight is really just beginning when I thought it was about over. I need to recover from this surgery as quickly and as best as I can so I can prepare myself physically, mentally and emotionally for the most difficult time of my life. I don’t know exactly what radiation (maybe chemotherapy) is going to involve, but I do know that I am not willing to settle for anything less than the best care, which now involves me going to John Hopkins. I deserve it and so does my family.
I will continue to do whatever is necessary and although I keep getting knocked down, NOTHING will stop me from standing up.

9 comments

  1. Aunt Marilym's avatar
    Aunt Marilym · May 20, 2016

    You go girl! 😘

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  2. Kathy Barbizzi's avatar
    Kathy Barbizzi · May 20, 2016

    Prayers!🙏🏻🙏🏻🙏🏻😇😘

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  3. Nicki's avatar
    Nicki · May 20, 2016

    Jess, you are in my prayers daily! You are a survivor and although this bump may be larger, you will get over it and come out even stronger. Johns Hopkins saved my life 10 years ago. I know you will be in the best hands there! The doctors are fabulous and it is only a car ride away! Please, if you have any questions or ever need a ride down to Hopkins, please reach out! I am very familiar with the facility ! Your spirit is strong and your love for your family will get you through this time. Positive thoughts and lots of love being sent to you!! You got this!!! Xo

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  4. Nicki's avatar
    Nicki · May 20, 2016

    Jess, you are in my prayers daily! You are a survivor and although this bump may be larger, you will get over it and come out even stronger. Johns Hopkins saved my life 10 years ago. I know you will be in the best hands there! The doctors are fabulous and it is only a car ride away! Please, if you have any questions or ever need a ride down to Hopkins, please reach out! I am very familiar with the facility ! Your spirit is strong and your love for your family will get you through this time. Positive thoughts and lots of love being sent to you!! Your got this!!! Xo

    Like

  5. Susan Bowman's avatar
    Susan Bowman · May 20, 2016

    Never doubt how wonderful you are as a mother! Your words of your story move many. Thank you for keeping me up to date. As always, you and your family are in my thoughts and prayers. Love you, Cousin!

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  6. J's avatar
    J · May 21, 2016

    I know you’ve probably heard this a thousand times….. But, “what doesn’t kills us only makes us stronger.” It’s true. You will continue to fight this battle with all that you have. Just know we continue to send our positive thoughts your way. We love you, gurl… JoAnn, James and Will.

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  7. Aunt Bobbie's avatar
    Aunt Bobbie · May 21, 2016

    Jessica,
    My Sweetheart, one correction to this post…. you are the best mom ever! I see the way you are with your kids, knowing how tired and how much pain you are in. You are amazing and each child knows who much you love them.
    Aunt Bobbie

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  8. Sue Wakerley's avatar
    Sue Wakerley · May 23, 2016

    Darling Jess, Robbie and your 3 gorgeous babies will get you through your illness, together with your pure grit determination and positivity. I know you are a fabulous mum, as Bob and Sue always sing your praises, so never doubt yourself at all, you are a wonderful mum and wife.

    Bobby sounds such a sweetheart, bless him, he wants to take care of you and get you better. Of course Brody and baby Natalie Rose are too young to understand.

    I so rely on your blog to keep us up to date and our admiration for you has truly no bounds. You are yet again going through the scariest and testing time yet you find time to keep us updated. Why, because you know you are loved so much and we’re all praying every day for the speediest recovery for you and we’re all in this fight with you. There’s one winner and that’s YOU💕

    You know you are in the best hands and so you will be guided wisely as to the next course of treatment.

    You must rest and build your strength back up following this surgery ready for the next step.

    Take care my darling and as always we are sending the biggest hugs and all our live to you.

    Sue, Pete, Alex and Kayleigh Xxxxxxxx💕💕

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  9. Suzanne Moore's avatar
    Suzanne Moore · May 26, 2016

    Hi Jessica,
    I work at Skippack and have been keeping up with your posts since your colleague first sent out your story. I’m so sorry you and your family keep getting hit with these struggles! You sound like you have an amazing handle on these hurdles and keeping up with being a great Mom!
    Our family has many (many!) medical challenges. It’s humbling…but you do come out stronger! I’m thinking of you!
    ~Suzanne Moore

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